{"id":2133,"date":"2021-05-10T08:41:15","date_gmt":"2021-05-10T15:41:15","guid":{"rendered":"https:\/\/bethechoice.org\/?p=2133"},"modified":"2021-06-06T10:17:00","modified_gmt":"2021-06-06T17:17:00","slug":"guide-to-self-advocacy","status":"publish","type":"post","link":"https:\/\/bethechoice.org\/fr\/guide-to-self-advocacy\/","title":{"rendered":"Guide to Self-Advocacy"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Self-advocacy is the action of representing oneself or one\u2019s views or interests. In simple terms, this means making your voice heard! For breast cancer patients, self-advocacy is\u00a0 crucial. Only by advocating for yourself can treatment decisions take your views into account.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">At Be the Choice, we are passionate about self-advocacy. It\u2019s partly what led to the creation of the <\/span><a href=\"https:\/\/bethechoice.org\/tree\/test\/breast-cancer-diagnosed\/decision-trees\/\"><span style=\"font-weight: 400;\">Decision Tree<\/span><\/a><span style=\"font-weight: 400;\">s. We want to promote self-advocacy, empower breast cancer patients with knowledge and help them make decisions that are best for them. This means speaking up for yourself at the beginning, middle and end of treatment.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">That said, let\u2019s not kid ourselves, self-advocacy is hard, especially when you\u2019ve been recently diagnosed. The news of a diagnosis is shocking, exhausting and overwhelming. It\u2019s hard to advocate for yourself in this situation.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">This is partly why we wanted to share these tips to help get you started: <\/span><a href=\"https:\/\/bethechoice.org\/wpfiles\/wp-content\/uploads\/2021\/05\/Practicing-Self-Advocacy.pdf\">Practicing Self-Advocacy<\/a><\/p>\n<ol>\n<li><span style=\"font-weight: 400;\"> Know your cancer:\u00a0<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">Know what kind of cancer you have, what stage you\u2019re in and <a href=\"https:\/\/bethechoice.org\/wpfiles\/wp-content\/uploads\/2021\/05\/Pathology_Report_Reading.pdf\">Understand your pathology report<\/a>. So many decisions are made based on these three factors. If you understand these, you\u2019ll be able to ask more informed questions, and understand the responses.\u00a0<\/span><\/p>\n<p>&nbsp;<\/p>\n<ol start=\"2\">\n<li><span style=\"font-weight: 400;\"> Bring a buddy:\u00a0<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">Ask a friend or family member to go with you to all medical appointments &#8211; preferably the same person if possible. Studies show that patients remember about 10% of what is said in these appointments. No wonder \u2013 it\u2019s an overwhelming time!<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The best buddies:<\/span><\/p>\n<ul>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Take detailed notes<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Write legibly<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Are punctual<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Tell really good jokes<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Stand in to support the patient if they lose their voice<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Support the patient in ways that are helpful to them (i.e. don\u2019t contradict the patient, think they \u2018know best\u2019, speak over the patient)<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Are able to remain objective<\/span><\/li>\n<\/ul>\n<p>&nbsp;<\/p>\n<ol start=\"3\">\n<li><span style=\"font-weight: 400;\"> Binder-it, seriously:<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">Keep track of your tests and results and take these to your appointments. It\u2019s best to use a 3-ring binder to house it all. Maybe divide it by treatment, or timeline \u2013 depending on what makes most sense to you. It\u2019s incredible how easy it is to lose track of what tests have been done and what the results have been. Sometimes even the doctors get confused! Medical appointments are relatively short. Easy and quick access to this information, particularly during medical consultations, saves time and keeps meetings on track.\u00a0<\/span><\/p>\n<p>&nbsp;<\/p>\n<ol start=\"4\">\n<li><span style=\"font-weight: 400;\"> Do your research:<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">Know what treatment options are available and what the pros and cons of each are. Discuss these with your medical team. Treatments vary and it\u2019s up to patients to understand their situation and make decisions that are right for them. Plus, your voice is more likely to be amplified and taken more seriously.<\/span><\/p>\n<p>&nbsp;<\/p>\n<ol start=\"5\">\n<li><span style=\"font-weight: 400;\"> Find your people:<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">Get in a group. Seriously. We know, we know, this is controversial. We\u2019ve heard so many people bristle at this. They think that people in support groups sit around and take turns crying. Maybe some groups are this, and that\u2019s ok if it works for them. If this isn\u2019t your vibe, find another group. The point is that cancer patients go through stuff that only other cancer patients understand and it\u2019s good to be in the company of people who get where you\u2019re at. Plus, it\u2019s a great way to find out about treatment options, get tips on great doctors and free parking at hospitals. Think of other cancer patients as a treasure trove of information and tips.\u00a0<\/span><\/p>\n<p>&nbsp;<\/p>\n<ol start=\"6\">\n<li><span style=\"font-weight: 400;\"> Choose your medical team carefully:<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">We all have choices in terms of who we consult for our medical care. Yes, even in Canada. In fact, especially in Canada. Think of your doctors as people who apply to be on your care team. These are people who will help you navigate options through an incredibly tough time. Think about what qualities you need to feel supported and seek out people who have these qualities. Remember, when it comes to your medical team, you don\u2019t have to settle. If there is someone on your team that doesn\u2019t support your ability to heal, it\u2019s your right to find someone else that is a better fit. When you meet them for the first time, use it as an opportunity to interview them to be on your care team. Here are a few questions you may ask them (but ask your own as well!):<\/span><\/p>\n<ol>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Describe how your training at the University of XX helps inform your advice for me today?<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Which treatments do you prescribe most often, and why?\u00a0<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">What factors do you consider when making a treatment recommendation?<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">What is your favourite medical journal and why?<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Tell me about the last article you read that may relate to me.<\/span><\/li>\n<li style=\"font-weight: 400;\" aria-level=\"1\"><span style=\"font-weight: 400;\">Could you describe your relationship with risk?\u00a0<\/span><\/li>\n<\/ol>\n<p>&nbsp;<\/p>\n<ol start=\"7\">\n<li><span style=\"font-weight: 400;\"> Understand medical sub-specializations:<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">Know what kind of doctor you are seeing and what their specialization is. All doctors are trained in specific fields of knowledge (specializations) that offer certain toolkits (treatment options). You need to know what kind of doctor you are seeing so you can ask questions they can answer. Be inquisitive and commit yourself to learning as much as you can. Not sure where to start? Check out our <\/span><a href=\"https:\/\/bethechoice.org\/tree\/test\/breast-cancer-diagnosed\/decision-trees\/\"><span style=\"font-weight: 400;\">Decision Trees<\/span><\/a><span style=\"font-weight: 400;\"> to get an idea of what treatments are available.<\/span><\/p>\n<p>&nbsp;<\/p>\n<ol start=\"8\">\n<li><span style=\"font-weight: 400;\"> Know your doctor<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">Know who your doctor is and what they know best. Know their name, where they were trained and what their fields of specialization are. Have they spoken to, or know, the other doctors on your team? If you can, connect with them on a personal level!<\/span><\/p>\n<p>&nbsp;<\/p>\n<ol start=\"9\">\n<li><span style=\"font-weight: 400;\"> Self-care, seriously:<\/span><\/li>\n<\/ol>\n<p><span style=\"font-weight: 400;\">Take self-care seriously at all times, but especially during treatment. Think about what puts a smile on your face and make it happen around you. Is it that person who can make you laugh, no matter how bad their humor is? Is it that meal that gives you joy and comfort? Is it going for a walk while listening to your favourite tunes? Whatever makes you happy, have it around you. The more you feel grounded in you, the stronger and more powerful you will be through this process.<\/span><\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"font-weight: 400;\">Follow along with us on <\/span><a href=\"https:\/\/www.facebook.com\/BTC.DecisionTree\"><span style=\"font-weight: 400;\">Facebook<\/span><\/a><span style=\"font-weight: 400;\">, <\/span><a href=\"https:\/\/twitter.com\/BeTheChoice_\"><span style=\"font-weight: 400;\">Twitter<\/span><\/a><span style=\"font-weight: 400;\"> and <\/span><a href=\"https:\/\/www.instagram.com\/btc.decisiontree\/\"><span style=\"font-weight: 400;\">Instagram<\/span><\/a><span style=\"font-weight: 400;\"> over the next couple of weeks to dive deeper into these tips and share your own with the Be the Choice community!<\/span><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Self-advocacy is the action of representing oneself or one\u2019s views or interests. In simple terms, this means making your voice heard! For breast cancer patients, self-advocacy is\u00a0 crucial. Only by advocating for yourself can treatment decisions take your views into account.\u00a0 At Be the Choice, we are passionate about self-advocacy. It\u2019s partly what led to [&hellip;]<\/p>\n","protected":false},"author":23,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[35],"tags":[],"class_list":["post-2133","post","type-post","status-publish","format-standard","hentry","category-blog"],"acf":[],"_links":{"self":[{"href":"https:\/\/bethechoice.org\/fr\/wp-json\/wp\/v2\/posts\/2133","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bethechoice.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/bethechoice.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/bethechoice.org\/fr\/wp-json\/wp\/v2\/users\/23"}],"replies":[{"embeddable":true,"href":"https:\/\/bethechoice.org\/fr\/wp-json\/wp\/v2\/comments?post=2133"}],"version-history":[{"count":2,"href":"https:\/\/bethechoice.org\/fr\/wp-json\/wp\/v2\/posts\/2133\/revisions"}],"predecessor-version":[{"id":2138,"href":"https:\/\/bethechoice.org\/fr\/wp-json\/wp\/v2\/posts\/2133\/revisions\/2138"}],"wp:attachment":[{"href":"https:\/\/bethechoice.org\/fr\/wp-json\/wp\/v2\/media?parent=2133"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/bethechoice.org\/fr\/wp-json\/wp\/v2\/categories?post=2133"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bethechoice.org\/fr\/wp-json\/wp\/v2\/tags?post=2133"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}